Saturday, May 2, 2015

A Typical Day for a Lymie in Treatment

Not all Lyme patients have the same kind of schedule.   This is how a typical day of killing Lyme looks like for me.  I always feel like I should be doing more though.

5:30am  Wake up and take my thyroid medication on an empty stomach.  There is a large percentage of Lyme patients who have trouble converting there t4 to t3.  This really slows metabolism and causes weight gain.  So a compounded t3 is needed as well as t4.  Eventually the thyroid will balance itself out and medication won't be needed.  This could have been the reason I struggled with my fitness goals over the last 4.5 years.  I ate a clean diet of 1200 calories and gained weight!

7am  Breakfast   My breakfast needs to be allergen free, intolerant free, and low in sugar, or I'm off to a really shitty start.  Sugar feeds the bacteria and is one of the worst things to consume while on a shit ton of antibiotics.
I typically eat a coconut wrap with turkey meat, (that just says turkey and salt as ingredients) lettuce, some kind of fermented food, like sauerkraut, and maybe avocado if it's around.

I've added a smoothie to the rotation:
Blueberries, sea vegetable powder, coconut oil, plain unsweetened soy milk,collagen powder, water, spinach, carrots, pomegranate juice, and sunflower seed butter.  I don't recommend trying this one, it's disgusting, especially if you have no appetite.  Coffee, I will not give up my coffee, I've given up too much already :)

Antibiotics go down the hatchet with breakfast, along with my B6, to keep my brain active in the dream department.


9am  Pills, pills and more pills  These are usually gagged down at work.  They are my probiotics, cell support, active B vitamins, immune support, vitamins, antioxidants, you name it.  This usually stirs some questions... In the morning, the pills don't go down easy.




Snacks and lunch  Snacking (and my thyroid problem) helps me to keep the weight on.  Here are some of my favorite, and only treats I consume, really.  Eating high quality, non-GMO, organic food is necessary, this means no chemicals, dyes or weird natural flavors.  I also need to avoid dairy, gluten, grains, sugar, nuts, my known allergens and known intolerances.  My allergens are random, some examples are dill, wheat, almonds and nectarines. I'm known to make up new food groups, in order to eat.




My lunch is usually a salad with loads of veggies, homemade dressing, or chicken and vegetables.

All day, as much lemon water as I can drink, sometimes a kombucha, cell food, chlorophyll, and milk thistle, in water.  Maybe some dandelion tea, coconut oil and antioxidants, like blueberries. Keeping your body alkaline is extremely important, this prevents Lyme bacteria from thriving.

Random during the day things, I might have some blood drawn.  It's really important to have the liver checked monthly, to see if it's holding up from all the antibiotics.  So far, so good on mine.

I'm told I have "good veins"
I try to hit up the infrared sauna when I can, it helps regenerate cells and I have lots of damage to mine.  I would love to be able to enjoy a massage once a week, but that doesn't happen :)  I also try to do some kind of exercise, whether it's with my training clients, at home, or a walk. I've been appreciating beauty on my walks lately.






2x a week  I have my IM Bicillin injections, this means that I am now visiting my non LLMD doctor twice a week to have them administered by a nurse, in the doctors office.  I've grown to love my injections, they help with my energy and mental clarity, so much.  I'm currently off for a week, waiting on insurance drama and I'm back to my lethargic, dyslexic, word changer, and slurrer of a self.

Looong needle

My IM Bicillin injection video below


5:30-7 Dinner  Again this usually consists of protein, veg and fat.
Pill form antibiotics are taken again with food.
8-9pm millions of other pills, in the evening, these go down a little easier.


My easy to transport pill box for sleepovers





















Sleep 9-11 So important when you are trying to regenerate your body and cells.  Sleeping problems are common amongst Lymies.  In order for me to get good sleep, I need to "get sleepy"  around 9pm.  This means get in a dark room, maybe look at a book, (not able to read just yet) a cold eye mask helps for some reason and melatonin.
I also foam roll the pain away, take epsom salt baths almost nightly. Run around to pharmacies, take naps, call insurance companies, call my doctor, call my other doctor, cook, take another nap :(
grocery shop, heating pad, work about 30 hours a week, and try to do fun stuff when I can.

 Most of my stress on a daily basis is usually caused by insurance companies.  I'm deathly afraid of medication not getting covered by insurance.  I'm also horrified that I will be unable to continue treatment for multiple reasons.

On the weekends, I try to have a little more fun, I'm off my brutal antibiotic Fri-Sun, so here I can enjoy a glass of wine or two.

Basically, my day revolves around getting rid of Lyme disease which makes me feel like a total outcast most days, and of course, my days are nothing like they used to be. :)
p.s.  This includes none of my personal life drama, which is also a total nightmare.




Thanks for reading.



No comments:

Post a Comment