Stop doing these things and start treating me like you would pre-Lyme.
1. Don't say childish comments when you see me taking 50 pills. I may have to take these pills while out on the town, gathering with friends, on a spin bike, at work, or in restaurants. I'm not trying to get attention I'm simply trying to live my life and kill Lyme at the same time. Keep your childish comments to yourself and try not to bring negative attention to the situation.
2. Don't leave me out of everything. Yes, I am sick. I may not be able to do a lot of the things I had in the past. But when you don't even try to include me, then talk about it all the time, it isolates me more, and makes me really sad. I'm still here, just sick!
3. Don't at any point remind me that I am physically limited. I will punch you in the face. I work in the environment where people aspire to be strong and fit. I am around it all day every day. Trust me, I know I can't do the things I used to, or may not look the way I want to look. But you do not have to tell me!
4. Leave my diet alone. Do you think I enjoy being gluten free, dairy free, grain free, sugar free, most fruits free, low fodmop, low glycemic, nut free, all my millions of allergens free? Over the course of the last 5 years, I have had to eliminate all these foods. This is something I have to do or I can't function. I will most likely eat like this forever. It's not a big deal to me anymore and it's none of your business what I eat.
5. If I tell you, that you have Lyme disease, don't laugh, because I'm not kidding. I'm basically the Lyme and co-infection whisperer. So take my advice and get yourself help, or you will be sorry.
6. If you really don't care how I am, don't ask. Plain and simple, you don't listen anyway.
7. If you do ask me how I am, don't start squirming and acting really uncomfortable when I start telling you exactly how I am. Awareness has to start somewhere.
8. Don't judge me. Whether you know I have Lyme or not, stop it. Don't judge anyone, you have no idea what people are going through.
9. Don't treat me like less of a person. Seriously, I'm sick and in pain, but I work hard to maintain a normal life. I can still do my job, I can still communicate with people, I can still have a social life, I can still do a lot of the things I could before. So do not limit me to things. This happens on a daily basis, it sucks and makes me feel under appreciated and discarded. I'm an actress dammit, I hide things really well.
10. Stop talking about how I look. Don't tell me I look tired, look so much better, have less puffy eyes, look sick, look skinny, look healthy, should be thinner, have a better complexion, look like you have jaundice, have red eyes, a swollen joint . I didn't realize that having Lyme disease opens the door and allows others to comment on your appearance and say things that you would never say to anybody.
You should watch this. She did a great job with her Lyme challenge.
Thanks for reading